Well we began to research and the news is not good. No cure as yet and a severe lack of funding to help with the level of research needed. We found the ART web site and I was inspired by all the fundraising events taking place and the actions undertaken by this charity. (The first glimmers of hope in an otherwise gloomy future). I wanted to be involved, raise some funds for ART, help them continue the great work. One thing I can do is cycle, being a member of a long distance endurance cycle club. If I could ride to the ends of the earth and back to find a cure or even to give Ken a better chance of normality, I would leave right now!
The longest, hardest ride in the calendar this year is the LEL, (London-Edinburgh-London), that's close enough to the ends of the earth for now. I went back to the ART web site to read more on all the fund raising and amidst all the inspiring events found a link to a extraordinary person, who had run the London marathon, and, knitted a scarf while doing it, and, not just any scarf, a big one. That person is Susie Hewer. The event had put Susie in the Guinness Book of World Records for producing "The longest scarf knitted Whilst Running a Marathon".
In a flash of parallel madness I contacted Susie to see if she wanted a new challenge. While training for the LEL Susie could come along too, on a tandem, perhaps repeating the success of the marathon run and knit another scarf. I waited for a reply, and I guess you now know the answer.
Why will we be doing this. Simple, for Ken, for ART, for all of us, who may one day need or benefit from a cure for an indiscriminate disease, that may already lurk within.
What are we doing? Raising awareness, Raising funds, and Raising Hope.
When, a series of rides to raise awareness with a record breaking event on the tandem. See the dates on our events list.
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